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Tuesday, 8 October 2013

A letter to Dr Rapaport

I sent this email today, and wanted to share it with you all.  If it were not for Dr Rapaport I don't know where I would be.  Whilst i never actually met or spoke to him, by using the resources he made available, I was able to mentally commit to my recovery and stay off steroids permanently.

Dear Dr Rapaport,

My name is Josh Strawczynski from Australia and I was a sufferer of Red Skin Syndrome.  Thanks to finding information that you published and the many other people suffering from this alfiction, I have been off steroids for 13 months and am now 95% back to normal.  Whilst there is still a little dry skin and occasional rash on my chest, my life is back to normal and nobody except me is any the wiser.

I can't thank you enough for providing your research to the global community.  If it were not for you I would still be searching for a miracle cure to something that my doctors and dermatologists were inadvertently doing to me.  I consider myself extremely fortunate to have found you and your work and will remain indebted to you for all my days.

In my recovery I have kept a blog, mapping the progress with images and videos and through this have made contact with many many other sufferers, and helped to diagnose a few people also in the same boat.  It's only a drop in the ocean, but I'm glad to be sharing your work to help others and will continue to support as best I can.  My blog is and as I said, there is excellent footage and imagery there.  I'm also a public speaker and insanely positive about life and the whole recovery process, so if there is anything in there that can help you, by all means you have permission to share it.

I just wanted to drop you a line to say thank you and if there is anything I can do to help, just let me know.